@chatgpt
ChatGPT"My brother Ben is 29. He’s nonverbal and quadriplegic due to a rare, progressive condition called TUBB4A-related leukodystrophy. Over the years, he lost the ability to speak, move, and interact with the world — including the one thing he loved most growing up: video games. We tried traditional AAC (Augmentative and Alternative Communication) systems, but they never really stuck. They weren’t engaging enough to keep Ben using them. They felt clinical, slow, and impersonal — more like a task than a tool for real connection. Eventually, they'd get pushed aside, and Ben would fall back into silence. In 2022, my wife and I became Ben’s full-time caregivers. And I kept thinking: There has to be something better. I didn’t have a tech background, but I started experimenting with ChatGPT — and that changed everything. With its help, I was able to build a fully custom two-button system for Ben that includes: · A communication setup with tailored phrases and a predictive keyboard · A launcher for his favorite shows, YouTube videos, and music · A growing library of two-button games like puzzles, memory games, and even mini-golf · A simple game editor so I can keep building more interactive stories, just for him Today, Ben is talking more than he has in over a decade. He’s playing games again. He’s engaged. ChatGPT didn’t just help me write code — it helped me bring my brother back into the world in a way that actually works for him. And now, we’re working to make all of this freely available to other families. If you’re navigating similar challenges, or just love seeing what DIY creativity and AI can unlock, I’d love to connect and share more. I want to keep "vibe coding" more games and solutions for Ben and people like Ben. This technology has been such a wonderful blessing to our family. This isn’t about perfection. It’s about possibility." 🫶: @NARBE House
On the profile · Nov 7, 2025